Tiffany's Thread (updates and prayers, and a place where she can smack Joe in public when he needs it :)

#2,752
#2,752
malinoisvol said:
O Lord, through the passion of the most sacred heart of Jesus, I beseech Thee to heal Tiffany. We thank you for giving her and her family the courage to face the situations so that others may see your perpetual light shining through them, a beacon of strength that overcomes setbacks, and reaffirms your precious love for all. In the name of Jesus Christ, King of Kings, please hear and bless this prayer O Heavenly Father. Amen
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#2,753
#2,753
O Lord, through the passion of the most sacred heart of Jesus, I beseech Thee to heal Tiffany. We thank you for giving her and her family the courage to face the situations so that others may see your perpetual light shining through them, a beacon of strength that overcomes setbacks, and reaffirms your precious love for all. In the name of Jesus Christ, King of Kings, please hear and bless this prayer O Heavenly Father. Amen
 
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#2,754
#2,754
O Lord, through the passion of the most sacred heart of Jesus, I beseech Thee to heal Tiffany. We thank you for giving her and her family the courage to face the situations so that others may see your perpetual light shining through them, a beacon of strength that overcomes setbacks, and reaffirms your precious love for all. In the name of Jesus Christ, King of Kings, please hear and bless this prayer O Heavenly Father. Amen
 
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#2,758
#2,758
I'm hoping to make a long weekend trip the weekend that spring break starts. We may try to take the girls like Friday - Monday to PCB, if Tiffany is able. She likely can't handle the water, but there's a park that's got a really calm area that wouldn't be rough on her. More for just spending time together, sitting on the balcony at night like we used to, enjoying the kids for a couple of days. We need a getaway that doesn't involve a Dr or surgery, just hoping she can be up to it
 
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#2,759
#2,759
joevol33 said:
I'm hoping to make a long weekend trip the weekend that spring break starts. We may try to take the girls like Friday - Monday to PCB, if Tiffany is able. She likely can't handle the water, but there's a park that's got a really calm area that wouldn't be rough on her. More for just spending time together, sitting on the balcony at night like we used to, enjoying the kids for a couple of days. We need a getaway that doesn't involve a Dr or surgery, just hoping she can be up to it
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Is the surgical site behaving, still staying closed?
 
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#2,760
#2,760
VolNExile said:
Is the surgical site behaving, still staying closed?
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Yeah, but still the pinhole divet. The good thing is it's closed, so it's not open to her insides. She'd be okay to get in the water, but I don't think she could handle any waves knocking her around. That's if, big if, she's not on treatment during that time, then she couldn't at all. She'd still go for the girls, but I don't want to make it unfair on her. Gonna have to find somewhere we could cancel if we had to.
 
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#2,761
#2,761
O Lord, through the passion of the most sacred heart of Jesus, I beseech Thee to heal Tiffany. We thank you for giving her and her family the courage to face the situations so that others may see your perpetual light shining through them, a beacon of strength that overcomes setbacks, and reaffirms your precious love for all. In the name of Jesus Christ, King of Kings, please hear and bless this prayer O Heavenly Father. Amen
 
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#2,765
#2,765
O Lord, through the passion of the most sacred heart of Jesus, I beseech Thee to heal Tiffany. We thank you for giving her and her family the courage to face the situations so that others may see your perpetual light shining through them, a beacon of strength that overcomes setbacks, and reaffirms your precious love for all. In the name of Jesus Christ, King of Kings, please hear and bless this prayer O Heavenly Father. Amen
 
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#2,766
#2,766
joevol33 said:
I'm hoping to make a long weekend trip the weekend that spring break starts. We may try to take the girls like Friday - Monday to PCB, if Tiffany is able. She likely can't handle the water, but there's a park that's got a really calm area that wouldn't be rough on her. More for just spending time together, sitting on the balcony at night like we used to, enjoying the kids for a couple of days. We need a getaway that doesn't involve a Dr or surgery, just hoping she can be up to it
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This may change, if we go, may go to Destin. Her nephews and sister lives right around PCB, and she's not wanting them around if we do. Too much drama going on, and trip will be rough enough.
 
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#2,767
#2,767
Well, got us a place booked at Okaloosa island (thanks to the new job and the my yearly bonus 😁), so worse case if something happens, it'd just be losing $ that I got for free anyway. That's how I'm looking at it, but hopefully nothing happens. She's actually starting treatment today, for kidneys, nurse will be here shortly. It'll last around 3 weeks, so by the time she's finished, hopefully she will feel good when we go to Florida on March 31st. Only staying 3 nights, but anything is better than nothing, and hopefully we can have a good time with the girls. Also, on the staph, it's not active right now, but the Dr did say it was colonized (or something like that). Basically, it's always gonna be there, but only active if something triggers it.
 
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#2,768
#2,768
O Lord, through the passion of the most sacred heart of Jesus, I beseech Thee to heal Tiffany. We thank you for giving her and her family the courage to face the situations so that others may see your perpetual light shining through them, a beacon of strength that overcomes setbacks, and reaffirms your precious love for all. In the name of Jesus Christ, King of Kings, please hear and bless this prayer O Heavenly Father. Amen
 
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#2,769
#2,769
O Lord, through the passion of the most sacred heart of Jesus, I beseech Thee to heal Tiffany. We thank you for giving her and her family the courage to face the situations so that others may see your perpetual light shining through them, a beacon of strength that overcomes setbacks, and reaffirms your precious love for all. In the name of Jesus Christ, King of Kings, please hear and bless this prayer O Heavenly Father. Amen
 
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#2,770
#2,770
Gonna rant for a minute, just cause I don't really want to talk to anybody about stuff, and I don't see anyone here, so I don't feel judged 🤣. I'm torn about stuff, like with going to Florida for example. Tiffany says stuff about being worried about going, cause like her just starting treatment again. She'll be finished, hopefully, but I do know it'll be hard on her. That's my thing, I try to plan stuff, work over to pay for it, so we can try to be somewhat normal. I feel bad for pushing her, but on the other hand, I don't want her to just settle for not being able to do anything. I also worry if I quit planning/daydreaming, then she'll feel like I've given up on her getting better. I mean if she's feeling that bad we won't go, but even if she doesn't feel like doing much, I'd like to take her. IDK, may not make sense cause it's hard to type what I'm feeling about it. Like she wanted to go to church today, but several have had strep and she's having treatment, so I told her it probably wasn't a good idea. She gets out a little, but not much. I guess I'm just worried about her getting to a point where she doesn't go anywhere except the Dr
 
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#2,771
#2,771
joevol33 said:
Gonna rant for a minute, just cause I don't really want to talk to anybody about stuff, and I don't see anyone here, so I don't feel judged 🤣. I'm torn about stuff, like with going to Florida for example. Tiffany says stuff about being worried about going, cause like her just starting treatment again. She'll be finished, hopefully, but I do know it'll be hard on her. That's my thing, I try to plan stuff, work over to pay for it, so we can try to be somewhat normal. I feel bad for pushing her, but on the other hand, I don't want her to just settle for not being able to do anything. I also worry if I quit planning/daydreaming, then she'll feel like I've given up on her getting better. I mean if she's feeling that bad we won't go, but even if she doesn't feel like doing much, I'd like to take her. IDK, may not make sense cause it's hard to type what I'm feeling about it. Like she wanted to go to church today, but several have had strep and she's having treatment, so I told her it probably wasn't a good idea. She gets out a little, but not much. I guess I'm just worried about her getting to a point where she doesn't go anywhere except the Dr
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This mental and emotional support is at least as important as the everyday stuff IMO. It’s so hard to keep up the hope with something going on as long as this.

Maybe start a discussion with her about does she feel like you’re nagging/ does this help her get out of a funk/ is there something else that you could do that she would find helpful.

I don’t think it helps either person when things are done with a “patient mentality.” Maybe try the someone else’s shoes bit: if you were battling a chronic, possibly fatal, possibly curable disease, how would you want others to treat you?

I think it’s natural that we always want to “fix” our loved ones, but they should have at least an equal voice in what’s going on. I guess it’s a matter of respect for their self-hood, not just trying to fix what is causing us pain to see.

Sorry, somewhat incoherent; lots of similar and miserable stuff going on here.
 
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#2,772
#2,772
joevol33 said:
Gonna rant for a minute, just cause I don't really want to talk to anybody about stuff, and I don't see anyone here, so I don't feel judged 🤣. I'm torn about stuff, like with going to Florida for example. Tiffany says stuff about being worried about going, cause like her just starting treatment again. She'll be finished, hopefully, but I do know it'll be hard on her. That's my thing, I try to plan stuff, work over to pay for it, so we can try to be somewhat normal. I feel bad for pushing her, but on the other hand, I don't want her to just settle for not being able to do anything. I also worry if I quit planning/daydreaming, then she'll feel like I've given up on her getting better. I mean if she's feeling that bad we won't go, but even if she doesn't feel like doing much, I'd like to take her. IDK, may not make sense cause it's hard to type what I'm feeling about it. Like she wanted to go to church today, but several have had strep and she's having treatment, so I told her it probably wasn't a good idea. She gets out a little, but not much. I guess I'm just worried about her getting to a point where she doesn't go anywhere except the Dr
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You make your plans and keep pushing, but if she says no, not much you can do. I didn't go through this as long as you have but we continued to plan and if she could, we did. If not, we didn't. Couple of times we went to the river only to turn around and come back home. Like Exie said, try to avoid the patient mentality as much as you can but understand when she just can't go.

Exie/Joe, that is the toughest part for me, not being able to fix things and make them right.
 
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#2,773
#2,773
82_VOL_83 said:
You make your plans and keep pushing, but if she says no, not much you can do. I didn't go through this as long as you have but we continued to plan and if she could, we did. If not, we didn't. Couple of times we went to the river only to turn around and come back home. Like Exie said, try to avoid the patient mentality as much as you can but understand when she just can't go.

Exie/Joe, that is the toughest part for me, not being able to fix things and make them right.
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You love them so much, and you just want to take on all the pain and stress and fear for them, and you just can’t. And you have to respect that it’s their journey more than yours, and the most loving thing that you can do is to be their cheerleader and support and shoulder to cry on, and only sometimes and when absolutely needed be their motivator, and to independently tackle any BS that comes up that makes their lives harder. (<- frankly, this is where we can help the most.) All you can do is all you can do.
 
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