Tin Man
Dirt's Childhood Playmate
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Praying for him manPlease pray for my dad. He is 89. At 3:30 AM on Monday, mom had to call the ambulance because he could not stand up to go to the bathroom, was burning up, and was a bit more confused than usual. He was admitted to the hospital yesterday with pneumonia (very grateful all the tests on his head showed no swelling/tumors). They also put in a catheter. He doesn't really understand that he is not at home and mom had to have him restrained (physically and with meds to help him calm down). Today, it took about an hour for two people to change his disposable underwear and change out his bed. He is fighting everything and everybody. They predict he'll be in the hospital for 4-5 days if he gets bedrest.
Prayers up, G!Please pray for my dad. He is 89. At 3:30 AM on Monday, mom had to call the ambulance because he could not stand up to go to the bathroom, was burning up, and was a bit more confused than usual. He was admitted to the hospital yesterday with pneumonia (very grateful all the tests on his head showed no swelling/tumors). They also put in a catheter. He doesn't really understand that he is not at home and mom had to have him restrained (physically and with meds to help him calm down). Today, it took about an hour for two people to change his disposable underwear and change out his bed. He is fighting everything and everybody. They predict he'll be in the hospital for 4-5 days if he gets bedrest.
Thank you for asking, friend.
Right now all is well. My son was moved from Trauma ICU to the step-down progressive care unit. He has been battling some typical sorts of infections, pneumonia, c-diff, etc, that are not uncommon for his situation. The hospital is currently working on rehab hospitals as he will have a long road to recovery ahead of him.
It is hard to imagine that one month ago we were talking survival and now we are talking quality of life. God has been good to us.
Got to spend the weekend with the other bits, taking them to the Lost Sea in Sweetwater, to a Knoxville Smokies game (Bush's Beans section for the win - tickets and dinner/sodas - yes please!) and to see the Mission Impossible movie. Almost felt like summer with the family. They have headed home to NC while I stay with the boy here (he was airlifted from NC to UT trauma after the accident in the mountains.)
Appreciate you checking in,
-RW-
Just thought you fine people might like to know that prayer isn’t wasted effortHere or dm if anybody goes thru something like this or just needs to vent. I’ve shared our story on some support groups and spoken with a dozen or so parents from around the world recently, many just needing to talk to someone who understands.
My middle son last year while at UT was having headaches and nausea. Eye Dr saw pappiledema and sent him to UTK for a stat mri. Before I got halfway up there, my son called and had been told he had a mass on his brain. Surgery within 36 hours. Thought it would be benign. Path delayed week after week which was worrisome. Our UTK surgeon was great btw and got it all out.
We had a bad exp at Vandy with them telling him/us his entire brain was infected, the cancer wasn’t taken out and there were microscopic cancer cells everywhere. I asked how he knew if they were microscopic and he said “due to the diagnosis of Astrocytoma stage 4. We will begin radiation and chemo and try our best to get him 5 years.” I couldn’t believe what I heard. My son fell on the floor.
Long story short, they were wrong. Further testing showed Neuroepithelial Patz1 fusion, a tumor rarely seen and studied, but being misdiagnosed. Much better prognosis. Ended up at st Jude for proton radiation and the outlook a good chance we don’t see it again, though we know it’s C so who knows. At any rate, we’ve been thru it an I’ve learned a lot. If anybody has comments or questions about the following I’d be happy to help online or dm or off:
-brain tumors. There are 150ish of them now. I would suggest second opinion and dna/molecular testing to verify any diagnosis. We were 2 days from unnecessary full brain radiation and chemo.
-recovery from brain surgery. Steroids and brain surgery is a tough mix and learned how to help him manage
-St Jude. Any questions about their systems or processes, which require no red tape. We had a scare during radiation and they immediately ran an mri and eye test, no questions asked or approval needed.
-Anything in regards to being a dad/parent and trying to handle it all. I did well at times and poor in others
-Follow up scanxiety
-Google. Do not pay attention to survival rates. I have run into sooo many who were told a few months and are years out.
Or anything other questions are good.
He is doing great btw. 13 months out and clear scans which are a miracle. If you see someone stacking Red Bull shelves in all the Weigels, that’s him.
Image attached.
Sorry for TL/DR length but it’s been importsnt for me in the healing process to put it out there and reach out as it was as dark and hopeless for us as could be but here we are today.
Praying for all of you. That is so hard.Please pray for my dad. He is 89. At 3:30 AM on Monday, mom had to call the ambulance because he could not stand up to go to the bathroom, was burning up, and was a bit more confused than usual. He was admitted to the hospital yesterday with pneumonia (very grateful all the tests on his head showed no swelling/tumors). They also put in a catheter. He doesn't really understand that he is not at home and mom had to have him restrained (physically and with meds to help him calm down). Today, it took about an hour for two people to change his disposable underwear and change out his bed. He is fighting everything and everybody. They predict he'll be in the hospital for 4-5 days if he gets bedrest.
sad - praying the little girl has a good life - its gonna be rough without her momMy cousin's daughter and her little girl was in a wreck, somewhere around Hendersonville/Gallatin. The little one is okay, but the mom isn't. They declared her brain dead, and have taken her off life support. She was still alive the last my aunt messaged me, but they don't expect her to last long. Pray for them, especially her little girl.
Praying....so sadMy cousin's daughter and her little girl was in a wreck, somewhere around Hendersonville/Gallatin. The little one is okay, but the mom isn't. They declared her brain dead, and have taken her off life support. She was still alive the last my aunt messaged me, but they don't expect her to last long. Pray for them, especially her little girl.
Great news and thank the Lord and thank you @Orangeslice13 for the update.A while back I asked for prayers for a friend.
Here’s an update as he’s found his way to VN
Just thought you fine people might like to know that prayer isn’t wasted effort
Prayers up, Joe!My cousin's daughter and her little girl was in a wreck, somewhere around Hendersonville/Gallatin. The little one is okay, but the mom isn't. They declared her brain dead, and have taken her off life support. She was still alive the last my aunt messaged me, but they don't expect her to last long. Pray for them, especially her little girl.
My cousin's daughter and her little girl was in a wreck, somewhere around Hendersonville/Gallatin. The little one is okay, but the mom isn't. They declared her brain dead, and have taken her off life support. She was still alive the last my aunt messaged me, but they don't expect her to last long. Pray for them, especially her little girl.
I am so sorry! Praying .My cousin's daughter and her little girl was in a wreck, somewhere around Hendersonville/Gallatin. The little one is okay, but the mom isn't. They declared her brain dead, and have taken her off life support. She was still alive the last my aunt messaged me, but they don't expect her to last long. Pray for them, especially her little girl.
It is a tragedy but at least she did help 6 people, praying for her little girl and familyFound out that my cousins daughter will be helping 6 people leaving this world. 2 people got a lung each, 2 got a kidney, one her l8ver, and one her heart. Heartbreaking, but 6 people will hopefully live on in this tragedy.
I posted this about 15 minutes ago, and after that I got the call that my dad passed away.They moved dad from the hospital to the nursing home.
In a lot of ways, this is a road I just traveled with my wife, a lot of which I tried to shield from my mother, who is experiencing more and more of it right now with dad.
They are both 89.
This has really been BAM-BAM with me, and I am not doing very well with all of it.
The antibiotic got rid of dad's pneumonia, but the unfamiliarness of the hospital environment, along with how far his dementia was (could not remember my wife's name for the past two years, did not remember what I did for a living, or where I lived, etc.) has send him down a serious path of delirium, which doesn't seem to be going away.
Yesterday and today, he was able to stand and walk with assistance, which is a major improvement. He has used a walker/wheelchair at home for about 2 1/2 years now.
Tonight, they had to add an IV. He was eating very well (pureed diet), but they're concerned about the amount of urine in his catheter. They're afraid he's dehydrated.
Each day is a different adventure. It was only three weeks ago that he was able to go to the annual family potluck at Eastman Cabins and had a great time. For the most part, he knew who people were.
He does not respond to mom nor me as if he recognizes us.
I can tell from his movements that he thinks he is dipping Skoal, which he did pretty much every waking hour at home hahaha
Please keep him and my family in your prayers.
Thanks, friends.