Orangeredblooded
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- Nov 29, 2017
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Good Lord! I’m sure the nurse meant well, but wow! And I certainly understand your own reaction. That’s an awful lot to deal with at this stage.
It was an awfully short letter, so I think that you didn’t miss anything.
The visit with the surgeon will provide a lot more information.
FWIW, there is an option after the total colectomy to hook up the end of the small intestine to the rectal sphincter to allow having bowel movements the normal way. There is usually an initial ileostomy requiring wearing a “bag”, allowing everything inside to heal up, and then three months or so there’s a second surgery to connect the remaining parts (ileo-anal anastomoses. After that, there’s no need for the bag. This is often called a J-pouch.
A bit graphic and TMI for others, but it might help at the visit with the surgeon.
Are they talking about a PET-CT scan for staging? I don’t know if they do this when they only found pre-cancerous polyps.
There hasn't been any discussion about a PET-CT scan. They have discussed the possibility of colon rebuild. Thank you for the information, it helps to read about it, rather than just hearing it.