Random, Thoughts, X,XXIV

[Orangeredblooded]

I just had a long talk with my Mom. I haven’t called her anywhere near enough since my Dad died. I have had a hard time processing that, but that is not an excuse.

It’s hard processing grief for ourselves and then trying to balance it also with the others that are dealing with it at the same time. There really is no right way or wrong way, and we all beat ourselves up. Chances are, your mom is dealing with it in her on way, and not keeping up with how many times you call and check.

 

[Tin Man]

has anyone ever been to Cheyenne Wyoming?

Yes

 

[Tin Man]

Dadgum. This thread took a serious turn. I had 3 colonoscopies in 8 months. I'm on an annual schedule, now (had "a" polyps).

ORB, the BF has my hopes & strength for what he's facing.

 

[theFallGuy]

I was born there.

looking for interesting things to see or do on a short day trip. especially anything historical

 

[TopsideVol]

looking for interesting things to see or do on a short day trip. especially anything historical

Go find a lake or river and jump into it with a rock tied to your ankle. I’ve been thru there even almost went to Laramie. Beautiful country but when are you going? Winter is rough there
https://www.google.com/travel/thing...=2ahUKEwj54uSg49fnAhVMgK0KHdTYAd8Qx2h6BAgBEEQ

 

[82_VOL_83]

You have been through a lot lately. You are truly a saint.

I agree with this whole heartedly.

 

[82_VOL_83]

Sorry to hear - hope it turns out ok -- Did his family have a history of it ? Thats one thing Ive been ducking and the Dr keeps badgering me about getting it done

If your are 50 and dont have it done you are a moron. Sorry, let me put it a other way, MORON!

 

[82_VOL_83]

Well, that’s good anyway.

I’ve had three c’scopes in a row, all finding adenomatous polyps (the possible pre-cancerous type.) All they do is snip them out and then move up the timetable for follow-ups to every 3 years. Annoying, but it’s just a repetition of the same procedure. And it definitely beats the alternative (being diagnosed with colon CA.)

I‘m adopted, so I don’t have any family history. Neither positive nor negative risk factors. We just have to go with what they find.

Had my first and had to come back at 5, then at 3, now I'm back on 5. My grandfather died from it. It is brutal. Do eet, do eet now.

 

[82_VOL_83]

Im considering it - after all that Hman & Weezer has been through (and MBRO miss him so much on here) and its free on my insurance anyway

Do I need to repeat my previous post about you being a moron?

 

[82_VOL_83]

we want to hear when you do, but no pictures when you do, please.

Prep pictures from the neck up only please....I want to make sure you have shared the agony with the rest of us.

 

[82_VOL_83]

Dang. Does he smoke?

A lot of smokers don’t realize that tobacco use is a big, big risk factor for bladder cancer. We tend to focus on the above-the-waist stuff (lung cancer, heart disease, COPD).

My best friend from HS has it in remission right now. He's 61 and never smoked.

 

[Orangeredblooded]

@VolNExile

 

[508mikey]

@VolNExile

View attachment 262025

rather odd for a Dr to mail results like that -- I always thought they would call and ask you come in asap

 

[Tin Man]

As we are discussing the human frailties which beset us as we age, I thought the following might provide yin for the yang.
An Ode to Being Old - Outside - Pocket

 

[Orangeredblooded]

rather odd for a Dr to mail results like that -- I always thought they would call and ask you come in asap

He goes for his surgery consult on 3/2 and then back to see this doctor on 3/11. Only thing I could think why they sent letter, is maybe the doctor felt it was necessary to get him to a surgeon and get this out pronto.

 

[TopsideVol]

He goes for his surgery consult on 3/2 and then back to see this doctor on 3/11. Only thing I could think why they sent letter, is maybe the doctor felt it was necessary to get him to a surgeon and get this out pronto.

That’s standard to send a letter when polyps are noticed.

 

[95 Vol Alum]

I’d want to see the evidence/video and have it explained if that’s an option. Prayers that they choose the best path of treatment for him.

 

[Vol524]

Prayers sent.

 

[VolNExile]

@VolNExile

View attachment 262025

I think the doc is concerned about FAP, familial adenomatous polyposis. They think it’s a genetic issue, where the tumor suppression genes aren’t working correctly. There are three different kinds, and with the most common form, they find hundreds or even thousands of polyps when they do a c-scope. The other two forms are a bit milder, but in all of them, the polyps become cancerous if nothing is done. (This is probably why he’s suggesting genetic testing.)

Familial adenomatous polyposis - Wikipedia

If it’s the severe form of FAP, he does need surgery. There are just too many polyps to keep snipping out via c-scope, over and over. I don’t know if the other forms automatically require surgery as well.

But the good news is that only some polyps “have advanced characteristics” (turning cancerous, I assume), so it looks like it was caught early.

Do you know if the doctor spoke to him after the procedure, when he had recovered from sedation? They usually give a quick summary of what they saw and did, and then follow up with a letter once the path report is in, but I’m sure they all do it a bit differently.

 

[3rdDegreeVol]

looking for interesting things to see or do on a short day trip. especially anything historical

It's not a very big town, the whole area is less 100K population. Some things to consider are the State Museum, the Depot Museum, the Nelson Museum, and the Messenger's Old West Museum, and the old Governors' Mansion. The Air Force base is now a missile base but was an old Army cavalry base back in the day. Most people don't know there's a museum on base as well. If you call them at least 48 hours in advance, they can arrange access to the base so you can visit the museum (and drive around the base). It's got a lot of interesting old Army architecture including a lot of the old cavalry facilities. Warren ICBM and Heritage Museum | Base Museum at F.E. Warren AFB, WY A little bit north of the city is the Quebec 01 Missile Alert Facility State Historic Site. It's an old Peacekeeper Alert facility that is now open to the public. End of July is Frontier Days, which is probably what most people know about Cheyenne.

 

[Orangeredblooded]

I think the doc is concerned about FAP, familial adenomatous polyposis. They think it’s a genetic issue, where the tumor suppression genes aren’t working correctly. There are three different kinds, and with the most common form, they find hundreds or even thousands of polyps when they do a c-scope. The other two forms are a bit milder, but in all of them, the polyps become cancerous if nothing is done. (This is probably why he’s suggesting genetic testing.)

Familial adenomatous polyposis - Wikipedia

If it’s the severe form of FAP, he does need surgery. There are just too many polyps to keep snipping out via c-scope, over and over. I don’t know if the other forms automatically require surgery as well.

But the good news is that only some polyps “have advanced characteristics” (turning cancerous, I assume), so it looks like it was caught early.

Do you know if the doctor spoke to him after the procedure, when he had recovered from sedation? They usually give a quick summary of what they saw and did, and then follow up with a letter once the path report is in, but I’m sure they all do it a bit differently.

I was there when the doctor was talking to him, his letter and some of what you are saying, was discussed. It was a little surreal at the time, just wanted to make sure we didn't miss anything. Didn't help at the time, the nurse kept coming in and saying over and over again, "I'm so sorry" and "You two just need to hold on to each other and love one another" (that's when I started questioning how much of this did I really want to take on)

 

[vol445]

Does anyone know the mad drummer

lol

 

[hmanvolfan]

I was there when the doctor was talking to him, his letter and some of what you are saying, was discussed. It was a little surreal at the time, just wanted to make sure we didn't miss anything. Didn't help at the time, the nurse kept coming in and saying over and over again, "I'm so sorry" and "You two just need to hold on to each other and love one another" (that's when I started questioning how much of this did I really want to take on)

I believe God will show you the way!

 

[VolNExile]

I was there when the doctor was talking to him, his letter and some of what you are saying, was discussed. It was a little surreal at the time, just wanted to make sure we didn't miss anything. Didn't help at the time, the nurse kept coming in and saying over and over again, "I'm so sorry" and "You two just need to hold on to each other and love one another" (that's when I started questioning how much of this did I really want to take on)

Good Lord! I’m sure the nurse meant well, but wow! And I certainly understand your own reaction. That’s an awful lot to deal with at this stage.

It was an awfully short letter, so I think that you didn’t miss anything.

The visit with the surgeon will provide a lot more information.

FWIW, there is an option after the total colectomy to hook up the end of the small intestine to the rectal sphincter to allow having bowel movements the normal way. There is usually an initial ileostomy requiring wearing a “bag”, allowing everything inside to heal up, and then three months or so there’s a second surgery to connect the remaining parts (ileo-anal anastomoses. After that, there’s no need for the bag. This is often called a J-pouch.

A bit graphic and TMI for others, but it might help at the visit with the surgeon.

Are they talking about a PET-CT scan for staging? I don’t know if they do this when they only found pre-cancerous polyps.

 

[Tin Man]

Does anyone know the mad drummer

Google says, "Steve Moore, aka “The Mad Drummer," has made quite a name for himself touring with the showband Rick K. & The Allnighters. His unorthodox approach and visual antics (a carryover from his metal roots) has been attracting a great deal of attention over the last several years. "