Tiffany's Thread (updates and prayers, and a place where she can smack Joe in public when he needs it :)

#6,905
#6,905
Well, we've found out what's going on with her heart rate and blood pressure. She had a visit with her heart dr, and some testing, and blows my mind after the ER said everything was okay. Granted, same hospital told me I didn't have a kidney stone several years ago, then I went home and passed it. Anyway, her heart dr informed her today that she has congestive heart failure. He's gonna do some more testing to determine the stage, and determine further treatment from there. He has her on something now, and she's doing okay today. Not sure if it's because of the lupus, the infections, or the kidneys, but he said hopefully they'll have more answers soon. I know they can treat it, not cure, but just worrisome with everything else. Just keep praying for her.
 
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#6,907
#6,907
joevol33 said:
Well, we've found out what's going on with her heart rate and blood pressure. She had a visit with her heart dr, and some testing, and blows my mind after the ER said everything was okay. Granted, same hospital told me I didn't have a kidney stone several years ago, then I went home and passed it. Anyway, her heart dr informed her today that she has congestive heart failure. He's gonna do some more testing to determine the stage, and determine further treatment from there. He has her on something now, and she's doing okay today. Not sure if it's because of the lupus, the infections, or the kidneys, but he said hopefully they'll have more answers soon. I know they can treat it, not cure, but just worrisome with everything else. Just keep praying for her.
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🙏
 
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#6,912
#6,912
joevol33 said:
Well, we've found out what's going on with her heart rate and blood pressure. She had a visit with her heart dr, and some testing, and blows my mind after the ER said everything was okay. Granted, same hospital told me I didn't have a kidney stone several years ago, then I went home and passed it. Anyway, her heart dr informed her today that she has congestive heart failure. He's gonna do some more testing to determine the stage, and determine further treatment from there. He has her on something now, and she's doing okay today. Not sure if it's because of the lupus, the infections, or the kidneys, but he said hopefully they'll have more answers soon. I know they can treat it, not cure, but just worrisome with everything else. Just keep praying for her.
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Sorry to hear this Joe, especially with everyrhing you all have been through already. I can't get on here daily and sometimes for multiple days, but please know you are and always will be in our prayers daily! 🙏🏻
 
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#6,913
#6,913
joevol33 said:
Well, we've found out what's going on with her heart rate and blood pressure. She had a visit with her heart dr, and some testing, and blows my mind after the ER said everything was okay. Granted, same hospital told me I didn't have a kidney stone several years ago, then I went home and passed it. Anyway, her heart dr informed her today that she has congestive heart failure. He's gonna do some more testing to determine the stage, and determine further treatment from there. He has her on something now, and she's doing okay today. Not sure if it's because of the lupus, the infections, or the kidneys, but he said hopefully they'll have more answers soon. I know they can treat it, not cure, but just worrisome with everything else. Just keep praying for her.
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Poor girl and your family cant catch a break! Continued prayers for you guys!
 
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#6,915
#6,915
Had to bring her to cumming for treatment, called out of work tonight. Her heart rate around 150, BP 190/120, so they're gonna see if treatment will help. Daughter is at camp, her dad went to her sister's house to babysit, so I had to bring her. Hopefully it'll help, or may have to see her cardiologist soon to adjust medication for thay stuff.
 
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#6,919
#6,919
joevol33 said:
Well, we've found out what's going on with her heart rate and blood pressure. She had a visit with her heart dr, and some testing, and blows my mind after the ER said everything was okay. Granted, same hospital told me I didn't have a kidney stone several years ago, then I went home and passed it. Anyway, her heart dr informed her today that she has congestive heart failure. He's gonna do some more testing to determine the stage, and determine further treatment from there. He has her on something now, and she's doing okay today. Not sure if it's because of the lupus, the infections, or the kidneys, but he said hopefully they'll have more answers soon. I know they can treat it, not cure, but just worrisome with everything else. Just keep praying for her.if
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Oh no.....Praying 🙏
 
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#6,921
#6,921
Maybe found something. There's a group called the undiagnosed disease network, a program of the national institute of health. One of her lupus friends told her about it, since they can't figure out exactly what's causing the infections. She just got off the phone with them, and they told her what to do to start the process. The lady said her situation sounds like what they do, but that it's a process to get in, so it may take a few months. Like after the application, it's like 30 days of Dr's looking at her story, then they request her medical records. After that, it's another long period of Dr's at different locations looking those over. They would then send her to a location that has Dr's working with them for a day, or several days of testing. Would likely be Birmingham, or Duke for us. Idk, we'll see what comes of it.
 
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