Tiffany's Thread (updates and prayers, and a place where she can smack Joe in public when he needs it :)


From April 30. They're ready.
It's just amazing, everything that has happened to this point, has put her in position to be their first choice. As bad as it's been, it's worked towards this. Romans 8:28, if you all aren't familiar, go read it.
 
Little update, we've been back and forth on the phone, and texting with the dr. this morning. So far so good, they've set up a zoom call with us, and the team that will do it next week. After that, we'll go out there for a couple of days to sit and talk. They want to go over everything, get to know us, and us get to know them, so we'll all be more comfortable with each other. They will likely have some preliminary tests done here, and have the results sent to them. Here's the biggie, the others in this study need a bladder, and kidney, Tiffany is the only one who just needs a bladder. What that means, she will be the first person ever to have this surgery. I'm not sure about when we'll go out there, I guess we may find out during the zoom next week. He did say they were aiming to try to do it within the next 3 months. Idk, I'll ask at the zoom, if a bladder is like other transplants, like we'll have to have a bag packed and be ready when they call. We'll see about that next week, but he did say that there'll be zero cost, and that will apply to all care. They will cover our travel, and hotel during all of this. Something I really liked, he wanted to do the zoom Monday, but she has a heart test for her port Monday morning. When she told him that, he was like "we have to get you fixed, there's no way you should have to live life like this at your age ". Lordy, I'm excited, nervous, but so hopeful.
Wow this is just like a miracle and moving so fast. Is Tiffany getting excited about all of this....... it is happening quickly.
 
Everything is good, no infection around the line at the heart. He was worried because of her constant high heart rate, said everything looks good with her heart. She talked to him about the possibility of the transplant, and he said her heart should be just fine if she has it
 


4 minutes on this video, it was in the info he sent her, and that's one of the two Drs who would do this. I've been so caught up, IDK if I explained a couple of things. They have done this, but only on living body patients. Meaning, the patient was completely brain dead, but had agreed prior to donate their body to the university for research. Also, everything in their body functioned perfect, except the brain. Each time they performed it, it worked, so they now feel confident moving forward. He explained all that on the phone, and the risks, and also that part of the reason for her staying so long, would be to make a neo bladder if something went wrong. So we completely understand the risks, like I have said if it's going to hurt her, then I pray it doesn't happen. That said, be it the bladder working, or neo bladder, he said the main thing is to close her stoma, undo her bowels from her urinary system, and it should stop the infection.

been away from VN way too long
This is stunning.
Prayers ;continue
 
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We're both getting kinda anxious about the zoom Friday, just not sure what to expect from it, how everything will go. I'm getting more nervous the more I think about it. While excited at the thought, I'm scared to death about the thought. My grandma had a liver transplant, and died in recovery from blood clots. I haven't said anything to her, but can't help thinking about that.
 
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We're both getting kinda anxious about the zoom Friday, just not sure what to expect from it, how everything will go. I'm getting more nervous the more I think about it. While excited at the thought, I'm scared to death about the thought. My grandma had a liver transplant, and died in recovery from blood clots. I haven't said anything to her, but can't help thinking about that.
I can't put myself in your place. But I can pray for peace for you and Tiff as you navigate this whole process. (Is it disrespectful for me to call her Tiff? I don't mean it that way at all.)

If you believe that God has designed this path, then take a deep a breath and take things one step at a time. I feel like He has shown you over and over how He is giving the world a slide show of His love when they see Tiffany. One example after the next of what it looks like to be a Christian.

I don't know his plan, obviously, but I hope he is about to show His face, front and center, to the world. Everyone who hears about this will hear about Tiffany's faithfulness, and her unwavering love for Jesus.
 
I can't put myself in your place. But I can pray for peace for you and Tiff as you navigate this whole process. (Is it disrespectful for me to call her Tiff? I don't mean it that way at all.)

If you believe that God has designed this path, then take a deep a breath and take things one step at a time. I feel like He has shown you over and over how He is giving the world a slide show of His love when they see Tiffany. One example after the next of what it looks like to be a Christian.

I don't know his plan, obviously, but I hope he is about to show His face, front and center, to the world. Everyone who hears about this will hear about Tiffany's faithfulness, and her unwavering love for Jesus.
Thank you, and most of us call her Tiff! What you said is true, but that battle between faith and fear can get rough sometimes! Just gotta feed the faith more, but easier said than done.
 
Thank you, and most of us call her Tiff! What you said is true, but that battle between faith and fear can get rough sometimes! Just gotta feed the faith more, but easier said than done.
I know. You have to breathe, and manage what is right in front of you. Do the things you know to do. Give the worry to God. He didn't equip you to shoulder it. 🧡

We'll help remind you where your help comes from, anytime you need it. That, and pray. We're good at both.
 
I know. You have to breathe, and manage what is right in front of you. Do the things you know to do. Give the worry to God. He didn't equip you to shoulder it. 🧡

We'll help remind you where your help comes from, anytime you need it. That, and pray. We're good at both.
Thank you
 
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