Tiffany's Thread (updates and prayers, and a place where she can smack Joe in public when he needs it :)

It's a tug of war on my emotions. Thank you.
I know. The only thing you can do is turn it completely over to God and trust him. He's the only one with the answer. That's where your peace will come from, the only place you will find it. And I know what a massive task that is because we are human.

Praying so hard for you guys.
 
Tiffany texted me, dr at ucla texted her. They've done one transplant, and he has a couple more lined up. He thinks he can do this, despite her having infection. He wants to talk to her dr here again, and try to work out a plan. Idk, I'm legit scared she couldn't survive it, but she's hopeful for it. I told her my concerns, and she's worried, but just tired of living like she is. We also understand the reality that the antibiotics will be less effective, and they're causing her problems. I was worried enough about the hernia surgery, but now this possibly back on the table again. Ugh, I'm stressed. Just help us pray please.
I must have missed something. Transplant?

Now is a time I wish I was a wordsmith like Tin Man because I don't have a word that best describes my feelings over this whole thing.

I can't imagine what you must feel, and crank that up 5 times to Tiffany's level and Tin would be at a loss. I've prayed and asked God to help me understand why the doctors haven't been able to figure this out. (Im not making this about me, its just my way of explaining my thoughts).

Its one thing to not be able to fix a health issue, but with Tiffany it seems like a bunch of monkeys trying to screw a football on just trying to figure out what exactly is wrong.

Although I can't fully understand what she is feeling, I do understand how she can be "just tired of living like she is". That alone is a testament.

I pray that God helps Tiffany stop thinking about all of this and helps her just focus on Him and His promise.
 
I must have missed something. Transplant?

Now is a time I wish I was a wordsmith like Tin Man because I don't have a word that best describes my feelings over this whole thing.

I can't imagine what you must feel, and crank that up 5 times to Tiffany's level and Tin would be at a loss. I've prayed and asked God to help me understand why the doctors haven't been able to figure this out. (Im not making this about me, its just my way of explaining my thoughts).

Its one thing to not be able to fix a health issue, but with Tiffany it seems like a bunch of monkeys trying to screw a football on just trying to figure out what exactly is wrong.

Although I can't fully understand what she is feeling, I do understand how she can be "just tired of living like she is". That alone is a testament.

I pray that God helps Tiffany stop thinking about all of this and helps her just focus on Him and His promise.
Concerning the transplant, Dr's at ucla recently completed the world's first bladder transplant. She was a candidate to be the first, but that septic shock scared everyone basically. While she doesn't have a bladder, they would do the transplant part of putting one in. Her not having one takes out about half the surgery of them having to remove a bad one. Instead of her having a hole in her stomach and wearing a bag to pee, they'd undo that, put a bladder and hook it all up like normal, and hopefully she'd eventually pee like normal. They were just scared if she's constantly got infections, that it'd be a possible life threatening issue during surgery. He thinks, after how the first one went, he could do it working with her dr here, and a plan with medication. Idk, we'll see what they figure out. We do appreciate the prayers, from all of you.
 
O Lord, through the passion of the most sacred heart of Jesus, I beseech Thee to heal Tiffany. We thank you for giving her and her family the courage to face the situations so that others may see your perpetual light shining through them, a beacon of strength that overcomes setbacks, and reaffirms your precious love for all. In the name of Jesus Christ, King of Kings, please hear and bless this prayer O Heavenly Father. Amen
 
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