Random Thoughts XXXIII

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Question: When a doctor says all signs point to a blood disorder, how concerned should you be? Is that one of those things that just sounds worse than it is?
 
The doctor's a gp so his knowledge is limited. Wants me to see a hematologist to get more specifics. But now there's a competing diagnosis, so I'm not sure what to think.
 
Path of least resistance.

Seriously, I would get with the hematotlogist asap. We have a friend that was dealing with complete exhaustion and having trouble walking up stairs. Originally they told her she needed a hip replacement, at age 35, now they say she might have lupus, have a damaged pericardium, has the lung capacity of a 40+ year chain smoker (she doesn't smoke at all), and still needs the hip replacement. All this as come about in the last 6 months.
 
Hopefully neither diagnosis is correct, but the competing diagnoses are blood disorder or the early stages of liver failure. I start seeing specialists next week. What started out as supposedly a bleeding ulcer(based on symptoms at the time) has now snowballed. What sucks is all the questions I have didn't come to me until a few hours after I left the doctor's office. In the moment, I was too stunned to think.

I guess I'm really at the point where only the specialists are going to have the answers anyway, so I'm stuck in wait and see mode. I see a GI doc on Monday. Not sure what tests he'll run or how long it will take to set them up, but he'll be the one to evaluate my liver.

The only facts I know for certain is scans show an enlarged liver and spleen and fluid built up in my abdomen. Also, I've had yo-yoing blood counts. (White blood cells, red blood cells, platelets)

Really just trying to get it all figured out right now. I feel guilty because I'm finding myself hoping the two doctors I've seen are incompetent and it turns out to be something simple, but I guess that's just human nature.
 
I've always jacked with you weezy but know that I consider you my friend. I'm in your corner. Have you seen your bilirubin or albumin levels yet? Did the doc drop the word ascites on you?
 
Love your heart weeze. The not knowing is horrible. At least with a diagnosis, a plan can be formulated. You're in my thoughts and prayers
 
Hopefully neither diagnosis is correct, but the competing diagnoses are blood disorder or the early stages of liver failure. I start seeing specialists next week. What started out as supposedly a bleeding ulcer(based on symptoms at the time) has now snowballed. What sucks is all the questions I have didn't come to me until a few hours after I left the doctor's office. In the moment, I was too stunned to think.

I guess I'm really at the point where only the specialists are going to have the answers anyway, so I'm stuck in wait and see mode. I see a GI doc on Monday. Not sure what tests he'll run or how long it will take to set them up, but he'll be the one to evaluate my liver.

The only facts I know for certain is scans show an enlarged liver and spleen and fluid built up in my abdomen. Also, I've had yo-yoing blood counts. (White blood cells, red blood cells, platelets)

Really just trying to get it all figured out right now. I feel guilty because I'm finding myself hoping the two doctors I've seen are incompetent and it turns out to be something simple, but I guess that's just human nature.

sorry to hear that weez. heres hoping for the best
 
I've always jacked with you weezy but know that I consider you my friend. I'm in your corner. Have you seen your bilirubin or albumin levels yet? Did the doc drop the word ascites on you?

He said something about my bilirubin and albumin levels being off, but I don't remember the word ascites. Once he used the term "organ failure" everything kind of blurred together. I'm trying to get my thoughts in order so I can ask the GI doc the relevant questions. Considering where this all started, the liver diagnosis came out of left field for me. He had his lab tech draw blood for a myriad of tests to help the GI doc have a headstart.

Thanks to all for the support. I go back and forth with many on here, but I never take any of it personal. I consider most I talk to friends, but most especially my fellow zoners.
 
Unfortunately, I don't think I'll be able to offer to meet up with anybody for a beer.


Just tryin' to keep a smile on my face. Everything else is out of my hands right now.
 
Unfortunately, I don't think I'll be able to offer to meet up with anybody for a beer.


Just tryin' to keep a smile on my face. Everything else is out of my hands right now.

Hang in there Weez. The Freak family will keep you in our thoughts and prayers. Keep us posted man. :hi:
 

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