That's great to hear.
I'm afraid that things haven't been very good on my end. Besides the fire, the OH has liver failure and had kidney cancer that was operated on (we think that's taken care of but aren't 100 percent sure). He's currently in hospice but hopefully not to die but rather to wait for a transplant. The bad news is that recently the hospice nurse said her records were that he had cancer in his liver too. That is when my jaw hit the floor because I've been with him every step of the way and at every hospitalization and doctor's appointment.
I'm hoping this is an error because I recall when he was first diagnosed he had a nodule on his liver as well as the malignancy on his kidney but they told me the one on his liver was benign. Some time between that initial hospitalization and the many others that have followed that got switched to malignant without anyone bothering to tell me and I'm hoping this is an error or what the hospice nurse said could be a diagnosis based on the kidney cancer because the area has never been biopsied.
I'm very worried atm though because he's having issues with confusion and the like that don't match his diagnosis or any of his known health problems. Hepatic encephalopathy can and does cause all sorts of confusion when amonia levels rise but his amonia levels have been ok and he had a recent hospitalization due to a siezure and they ran every imaging test on his brain so I know there's no bleed or tumor there. Something else is wrong but right now, I'm trying to figure out which way to go and what exactly should be done about it. We're trying a new med to see if we can at least alleviate the symptoms. We're going to see his liver specialist but I need to get him physically and mentally better than he is right now.
The good news is that last Halloween we celebrated the fact that we never thought he'd make to Halloween and now another Halloween approaches. Whatever else is going on, he's made it a lot longer than the doctors ever thought he would when he first went in. I still think he can make it to a transplant but we have to find out what is causing his current symptoms.
