Bumpy road ahead...

#1
Wylo

Wylo

Nega what?
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Sep 14, 2008
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#1
This will be long and personal. Feel free to skip it if you want.

I have been diagnosed with autoimmune liver disease. Also known as autoimmune hepatitis. I'll save you the googling.

This is when your immune system attacks healthy cells. Sorta like when the two Gators were blocking each other for no apparent reason. It's that kind of stupid.

This is not caused by alcohol, disease, or drugs. This is just something that my body did. This is a rare condition that only affects 200k people a year. There is no real medical reason for this to happen.

This can lead to cirrhosis, liver cancer, liver failure. This would put me potentially needing a transplant.

The real kicker to this is that in 2009, I had surgery to remove skin cancer from my waistline. This was also a very rare type of cancer that wasn't caused by the sun or tanning or any of the common causes of skin cancer.

Yep, again, it was just something that my body created. It said "here, have some cancer."

I've been cancer free since then, but now this..

I have to have a biopsy done on my liver this coming Tuesday. They will go down my throat and through my stomach. Yay.

I'm not sure what I hope to accomplish by posting this, but like I said, this is like a little therapy group.

And I'm scared...
 
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#2
#2
Sometimes it just helps to talk to folks and get it all out there regardless if it's your family, friends or just some people you chat with on a message board. I'm very sorry your having to go thru this and my family will be sending prayers to you and yours! Keep us updated and anytime you feel you need to talk the VN Family is here for you brother!
 
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#3
#3
I can understand the body attacking itself, because that's what the lupus does to my wife. I'm sorry you're facing this, but glad you posted so we can pray for you. You've got a lot on you right now, and I know how overwhelming it can be. I've talked to you away from here, and sincerely think a lot of you. We're praying bud, hang in there.
 
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#5
#5
Man, the good Lord is dealing you and your family some tough cards. I know exactly how you feel wondering why was I chosen to have to go through this when everybody else doesn’t have to. I have felt the same way when I found out i had lung cancer and then almost went to heaven with this latest pneumonia and sepsis episode. What I found out along the way is that even though it has been hard to recover, I have been seeing other folks (like Melissa for example) that also have a hard road ahead so it’s just not me. My advice is to try to keep a positive attitude that you will win this fight and buckle down, lace them up and fight it by trusting your doctors advice and doing everything they ask you to do. You are going to have a lot of people rooting and praying for you. You got this my friend!
 
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#7
#7
Not sure what kind of advice I can give other than make sure you have good doctors you trust. I've lived through cirrhosis which was also not caused by alcohol. Mine was caused by NASH. I've lived through a liver transplant. There were absolutely times I didn't think I was going to make it, but good doctors and faith kept me going and brought me through. Surround yourself with people who care about you, because you'll need them to lean on from time to time. Strength isn't trying to go it completely alone. The people who love you want to help you. Strength is accepting that help. The hardest thing to do is humble yourself. Keep fighting.
 
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#8
#8
Out of curiosity, where are you being treated?
 
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#11
#11
I was born at St. Thomas Hospital in Nashville, bout 25-30 years ago.

Sorry to hear your new news. I'll be watching this thread to keep up.

I'm still sending prayers for Melissa. She will be in the prayers of prayer meeting tonight.
 
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#12
#12
Behr said:
I was born at St. Thomas Hospital in Nashville, bout 25-30 years ago.

Sorry to hear your new news. I'll be watching this thread to keep up.

I'm still sending prayers for Melissa. She will be in the prayers of prayer meeting tonight.
Click to expand...

Thanks buddy.
 
#13
#13
If you end up needing a transplant, you'll probably be transferred over to Vanderbilt. Vanderbilt and UT Memphis are, I believe, the only two hospitals in the state that do liver transplants. My surgeon was Dr. Geevarghese. Great doctor.
 
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#14
#14
Wylo said:
This will be long and personal. Feel free to skip it if you want.

I have been diagnosed with autoimmune liver disease. Also known as autoimmune hepatitis. I'll save you the googling.

This is when your immune system attacks healthy cells. Sorta like when the two Gators were blocking each other for no apparent reason. It's that kind of stupid.

This is not caused by alcohol, disease, or drugs. This is just something that my body did. This is a rare condition that only affects 200k people a year. There is no real medical reason for this to happen.

This can lead to cirrhosis, liver cancer, liver failure. This would put me potentially needing a transplant.

The real kicker to this is that in 2009, I had surgery to remove skin cancer from my waistline. This was also a very rare type of cancer that wasn't caused by the sun or tanning or any of the common causes of skin cancer.

Yep, again, it was just something that my body created. It said "here, have some cancer."

I've been cancer free since then, but now this..

I have to have a biopsy done on my liver this coming Tuesday. They will go down my throat and through my stomach. Yay.

I'm not sure what I hope to accomplish by posting this, but like I said, this is like a little therapy group.

And I'm scared...
Click to expand...
Not liking this because of your diagnosis, but yes, we are everyone's therapy group. We all (well most) care about people here.
 
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#15
#15
Wylo said:
This will be long and personal. Feel free to skip it if you want.

I have been diagnosed with autoimmune liver disease. Also known as autoimmune hepatitis. I'll save you the googling.

This is when your immune system attacks healthy cells. Sorta like when the two Gators were blocking each other for no apparent reason. It's that kind of stupid.

This is not caused by alcohol, disease, or drugs. This is just something that my body did. This is a rare condition that only affects 200k people a year. There is no real medical reason for this to happen.

This can lead to cirrhosis, liver cancer, liver failure. This would put me potentially needing a transplant.

The real kicker to this is that in 2009, I had surgery to remove skin cancer from my waistline. This was also a very rare type of cancer that wasn't caused by the sun or tanning or any of the common causes of skin cancer.

Yep, again, it was just something that my body created. It said "here, have some cancer."

I've been cancer free since then, but now this..

I have to have a biopsy done on my liver this coming Tuesday. They will go down my throat and through my stomach. Yay.

I'm not sure what I hope to accomplish by posting this, but like I said, this is like a little therapy group.

And I'm scared...
Click to expand...


Red has had medical issues before the Lyme disease. She is in remission with PBC which is also an autoimmune liver disease. It was considered cancer for a while but is back to being considered autoimmune.

I tell you that to tell you this. She is also a nurse and would not mind talking about it with you if you’d like. She’s a retired RN which helps with all the medical stuff.

And of course thoughts and prayers.
 
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#16
#16
Orangeslice13 said:
Red has had medical issues before the Lyme disease. She is in remission with PBC which is also an autoimmune liver disease. It was considered cancer for a while but is back to being considered autoimmune.

I tell you that to tell you this. She is also a nurse and would not mind talking about it with you if you’d like. She’s a retired RN which helps with all the medical stuff.

And of course thoughts and prayers.
Click to expand...


I appreciate it. I'd love that.
 
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#19
#19
Not going to lie Wylo, I saw this the moment you posted it and felt awful, but just had no words. You’re definitely being pushed in lots of difficult directions, and I wish I had great words of advice and comfort. But I’ve struggled to find them.

I’ve seen how you’re one of the first and most persistent posters here when people speak out for prayers or that they are in need. Now is the time that we join together to be there for you. You and your sister are most certainly in my prayers, and I send nothing but the best vibes your way. I’m not s doctor, I don’t play one on tv, and I even get lost reading Web MD. But if there’s anything I can do for you, please let me know. I hope God can comfort you, your sister, and all your family.
 
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#20
#20
Wylo said:
I'm not sure what I hope to accomplish by posting this, but like I said, this is like a little therapy group.

And I'm scared...
Click to expand...

It makes sense to reach out. Hopefully it's a comfort knowing others are thinking of you and praying for the best.

Take care Wylo. I really hope everything gets better.
 
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#22
#22
volfanbill said:
Not going to lie Wylo, I saw this the moment you posted it and felt awful, but just had no words. You’re definitely being pushed in lots of difficult directions, and I wish I had great words of advice and comfort. But I’ve struggled to find them.

I’ve seen how you’re one of the first and most persistent posters here when people speak out for prayers or that they are in need. Now is the time that we join together to be there for you. You and your sister are most certainly in my prayers, and I send nothing but the best vibes your way. I’m not s doctor, I don’t play one on tv, and I even get lost reading Web MD. But if there’s anything I can do for you, please let me know. I hope God can comfort you, your sister, and all your family.
Click to expand...


Thank you. I appreciate the kind words. Means a lot.
 
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