Tiffany's Thread (updates and prayers, and a place where she can smack Joe in public when he needs it :)

#4,326
#4,326
WestTennesseeFox said:
Your sister in law should be able to tell you what this means with her medical school degree.
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Dang it, and I've been googling crap!🤣. Speaking of, Tiffany said her dad has been miserable since the Dr told her around 6 months, maybe longer. She said he got so full of hope from her idiot sister, and that devastated him.
 
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#4,327
#4,327
joevol33 said:
View attachment 617250
Here's a page Tiffany sent me. Bottom says risk of the femur, but the Dr told them it did have a fracture. Might have been after the scan in the hospital the other day. I can't keep up. There were like 5 pages like this talking about where all it was. Pretty sure this was the scan before she got admitted.
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Oh, dear Lord.

Ok, the existing (current) pathologic fracture is in her back left 8th rib, and maybe in her left iliac wing, which is the bone that “wings” out from your lower spine on the left and right. When you put your hands (fists) on your hips like the meme of the angry little kid, the bones you feel are the iliac wings.

She has a radiographic lesion (tumor) at the top of her right thigh bone, in front, just below where the thigh bone hooks into her pelvis, meaning the hip joint. That’s the one that they’re concerned may spontaneously fracture, and apparently the one they want to target with radiation therapy.

On a PET scan, the word “avid” essentially means a “hot” malignant tumor, one that is reproducing at high speed.

I’ll leave it there, unless you want further translation. But Joe, it’s a really bad report. The cancer is pretty much everywhere, and on both sides of her body - lungs, lymph nodes (including compression of her major blood vessels, and apparently starting to invade the left internal jugular vein), liver, bones. No mention of breast though.

Has the family talked to anyone from palliative care? Palliative care means that they will address issues that maybe can make her days more comfortable, which would include the radiation therapy. It’s not curative, but it can extend life, and definitely maximize her comfort levels. Hospice would come after that. No more attempts to fight disease, just comfort care.

Praying for you guys. 🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻

Edit to add: if they’re trying chemo, that’s generally not palliative care, unless it’s meant to shrink some of the tumors that are causing problems. And that’s perfectly reasonable. But the family does need to know that if someone from palliative care wants to meet with them, that’s what it deals with.

Another edit: fixing some of iPhone’s nonhelpful helps
 
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#4,328
#4,328
VolNExile said:
Oh, dear Lord.

Ok, the existing (current) pathologic fracture is in her back left 8th rib, and maybe in her left iliac wing, which is the bone that “wings” out from your lower spine on the left and right. When you put your hands (fists) on your hips like the meme of the angry little kid, the bones you feel are the iliac wings.

She has a radiographic lesion (tumor) at the top of her right thigh bone, in front, just below where the thigh bone hooks into her pelvis, meaning the hip joint. That the one that they’re concerned may spontaneously fracture, and apparently the one they want to target with radiation therapy.

On a PET scan, the word “avid” essentially means a “hot” malignant tumor, one that is reproducing at high speed.

I’ll leave it there, unless you want further translation. But Joe, it’s a really bad report. The cancer is pretty much everywhere, and on both sides of her body - lungs, lymph nodes (including compression of her major blood vessels, and apparently starting to invade the left internal jugular vain), liver, bones. No mention of breast though.

Has the family talked to anyone from palliative care? Palliative care means that they will address issues that maybe can make her days more comfortable, which would include the radiation therapy. It’s not curative, but it can extend life, and definitely maximize her comfort levels. Hospice would come after that. No more attempts to fight disease, just comfort care.

Praying for you guys. 🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻

Edit to add: if they’re trying chemo, that’s generally not palliative care, unless it’s meant to shrink some of the tumors that are causing problems. And that’s perfectly reasonable. But the family does need to know that if someone from palliative care wants to meet with them, that’s what it deals with.
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Thanks for that, there's a lot we're googling because we don't understand it. He said it was aggressive, and we know it's bad and spreading/growing. IDK about the palliative care, I'll ask Tiffany when she gets home. I mean dummy me can figure from that one page that it's bad, IDK why her idiot sister told them it's not aggressive, and they'd get her cancer free. It's broken her daddy after getting his hopes up, then the Dr telling them "6 months maybe more". I do know he said they're going to try treatment to slow it, and stretch her lifespan as much as possible, if she can handle the treatment.
 
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#4,330
#4,330
WestTennesseeFox said:
I don't even know your sister in law but I want to smack her into next week.
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Same. I completely understand being hopeful, and how that helps someone to fight. That said, you don't tell someone who's eat up with cancer that they'll be cancer free, and the Dr is wrong.
 
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#4,331
#4,331
joevol33 said:
Thanks for that, there's a lot we're googling because we don't understand it. He said it was aggressive, and we know it's bad and spreading/growing. IDK about the palliative care, I'll ask Tiffany when she gets home. I mean dummy me can figure from that one page that it's bad, IDK why her idiot sister told them it's not aggressive, and they'd get her cancer free. It's broken her daddy after getting his hopes up, then the Dr telling them "6 months maybe more". I do know he said they're going to try treatment to slow it, and stretch her lifespan as much as possible, if she can handle the treatment.
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Yeah I’m guessing that the idiot sister lives in a permanent state of denial (part of addiction), so she is completely unable to recognize/ acknowledge bad news.

Anyway, the doctor sounds kind, and willing to try some therapies. Which paired with his lifespan predictions makes it sound like he’s not giving up, but he’s realistic at the same time (what I would want from my own doctor.)

Maybe Tiffany can tell her dad that her sister was speaking from hope, and that we are all blessed by having hope. Because miracles do happen. And we can continue to pray for them.
 
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#4,332
#4,332
VolNExile said:
Yeah I’m guessing that the idiot sister lives in a permanent state of denial (part of addiction), so she is completely unable to recognize/ acknowledge bad news.

Anyway, the doctor sounds kind, and willing to try some therapies. Which paired with his lifespan predictions makes it sound like he’s not giving up, but he’s realistic at the same time (what I would want from my own doctor.)

Maybe Tiffany can tell her dad that her sister was speaking from hope, and that we are all blessed by having hope. Because miracles do happen. And we can continue to pray for them.
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Well said. I will tell her to tell him that.
 
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#4,334
#4,334
joevol33 said:
Thanks for that, there's a lot we're googling because we don't understand it. He said it was aggressive, and we know it's bad and spreading/growing. IDK about the palliative care, I'll ask Tiffany when she gets home. I mean dummy me can figure from that one page that it's bad, IDK why her idiot sister told them it's not aggressive, and they'd get her cancer free. It's broken her daddy after getting his hopes up, then the Dr telling them "6 months maybe more". I do know he said they're going to try treatment to slow it, and stretch her lifespan as much as possible, if she can handle the treatment.
Click to expand...
If you ever want a translation from medical-ese into everyday speech, and the hospital can’t help you, just holler. That was my career for 20-some-odd years. Not anywhere remotely near being a doctor, just a translator.

{{{{{Hugs}}}}} at all y’all. ❤️
 
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#4,335
#4,335
VolNExile said:
If you ever want a translation from medical-ese into everyday speech, and the hospital can’t help you, just holler. That was my career for 20-some-odd years. Not anywhere remotely near being a doctor, just a translator.

{{{{{Hugs}}}}} at all y’all. ❤️
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Definitely may hit you up with other reports as we get them!
 
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#4,337
#4,337
VolNExile said:
Yeah I’m guessing that the idiot sister lives in a permanent state of denial (part of addiction), so she is completely unable to recognize/ acknowledge bad news.

Anyway, the doctor sounds kind, and willing to try some therapies. Which paired with his lifespan predictions makes it sound like he’s not giving up, but he’s realistic at the same time (what I would want from my own doctor.)

Maybe Tiffany can tell her dad that her sister was speaking from hope, and that we are all blessed by having hope. Because miracles do happen. And we can continue to pray for them.
Click to expand...
That is so well said. 🧡
 
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#4,338
#4,338
Tiffany read this, and said thank you all. Had to give her a spoiler alert that I was talking about her sister being an idiot, everyone agrees, and Foxy wanted to smack her. She laughed 🤣. She appreciates you guys though, not just for praying for her momma, but she knows you do her, and you've been there for me to vent.
 
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#4,339
#4,339
joevol33 said:
Tiffany read this, and said thank you all. Had to give her a spoiler alert that I was talking about her sister being an idiot, everyone agrees, and Foxy wanted to smack her. She laughed 🤣. She appreciates you guys though, not just for praying for her momma, but she knows you do her, and you've been there for me to vent.
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Players Prayers and blessings and showers of love and grace from above on everyone here. ❤️❤️❤️

edit: lol wut
 
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#4,344
#4,344
joevol33 said:
My mom and aunt came down, we're about to go down to the hospital. Her parents know now, how bad it is. She called me crying, said her dad told them they might as well shoot him now. This is going to be hard on him, grief can be a dangerous thing. I'm worried about when she does pass, and he's alone.
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He probably should not stay alone for a little while at least.
 
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#4,345
#4,345
joevol33 said:
Kinda some rough news as far as Tiffany goes. They're still wanting to help her, but the septic shock has them really concerned. They're afraid her kidneys won't be able to handle the specific autoimmune suppression she'll have to start because of the sepsis. They haven't said no, but what they want we're not really comfortable with. They're wanting her to remove the tubes and see how her body reacts without that treatment, then put them back in for the treatment if everything is okay before we proceed. Both times we bout lost her was putting those in, and I'm not wanting it to keep being done. We told him that we're not comfortable doing it, and he's going to talk to the other Dr. Maybe this is just not meant to be, I'd rather try to find something else, than her go out there and not come home. She's pretty upset, but we understand their concerns.
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I am praying that the Lord will lead, Guide and direct you and Tiffany in her medical decisions. You both know what has worked in the past and what has not worked and what you all are comfortable with.
 
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#4,347
#4,347
VolNExile said:
Yeah I’m guessing that the idiot sister lives in a permanent state of denial (part of addiction), so she is completely unable to recognize/ acknowledge bad news.

Anyway, the doctor sounds kind, and willing to try some therapies. Which paired with his lifespan predictions makes it sound like he’s not giving up, but he’s realistic at the same time (what I would want from my own doctor.)

Maybe Tiffany can tell her dad that her sister was speaking from hope, and that we are all blessed by having hope. Because miracles do happen. And we can continue to pray for them.
Click to expand...
Well said @VolNExile
 
#4,348
#4,348
Look at this. Tiffany is going through medication, and trashing out of date stuff. Mostly antibiotics, where they'd swap halfway through because it wasn't working. She's just getting started 🤣. There's a few vitamins, and something I had from kidney stones, but dang. We're taking her name off the bottles and putting them in recycling, and I'm going to put this bag in the black trash bag. IMG_20240204_223805571.jpg
 
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#4,350
#4,350
joevol33 said:
Look at this. Tiffany is going through medication, and trashing out of date stuff. Mostly antibiotics, where they'd swap halfway through because it wasn't working. She's just getting started 🤣. There's a few vitamins, and something I had from kidney stones, but dang. We're taking her name off the bottles and putting them in recycling, and I'm going to put this bag in the black trash bag. View attachment 617742
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Hey Joe. Consider taking all those pills to your local pharmacy where they will dispose of them properly, i.e. not in the landfill. Most police stations and sheriff offices will take them, too.
 
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